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Autism’s Love: Making Connections

I am feeling very proud of myself right now. I’ve been working on my new facebook page Autism’s Love: Making Connections and launched it 4 days ago. My dream is to connect with special needs individuals and communities from around the world. I hope my page will be a fun and informative place to visit and share resources. I don’t know about you, but sometimes I get caught up in my own little world, always focusing on the tasks at hand. It’s good to take out time to see what is going on in other parts of the world and to see how others are dealing with their individual special needs. I love learning about different kinds of resources. Diversity is key for me. I’ve always loved learning about people and their cultures and now I’ve created an avenue personally connection to me to do so.

Welcome to my new obsession. 🙂 I hope my new page enlightens and inspires you.

Autism’s Love: Making Connections

Drawing the Line

There is a fine line between love and hate.
Between wellbeing and pestilence.
Good and evil…

Where do you draw the line?

I received mixed reactions to this statement, so here is my reply…

Sometimes a viewpoint can be askew due ones desire to be set apart from…or to not adopt the precept of another outside of ones grouping, be it ethnicity, sex, religion, logistics or otherwise. When we look at words, we must look at the truth of the meaning as it is globally and not corner it into…or by way giving power unto an inadequate source.

Lets take a look at creation as we know it. In creation there are opposites; male and female, good and bad, light and dark, hot and cold, left and right, up and down, inside and out and so on. In order to achieve balance there must be opposites. One cannot stand alone as an “only child,” less it be unidentified and if unidentified how can we justify it’s existence? How would we no love if we did not know hate? How would we know good if we did not know evil? How would we know direction if there were no left and right or up and down? How would we know days, years or any measure of time if we did not have day and night? How would we be here if there were no man and woman? In all things there is a cause and effect. And with all things in human nature the lines are drawn, but can be easily crossed…it is just a matter of ones perception of what they see as a truth or not.

In terms of my statement, “There is a fine line between love and hate,” it stands true. There are instances where one can love something or someone so much that they develop hate for another. So my question is where does one draw the line. Do you love in all instances or do you choose to find reason to hate within the loves you have? There is always a beginning and an end…a this or a that. So my friends it is not to give western society the blame or fame for this cornerstone remark. It is simply a reflection of a perception of that which is.

In stating this, my point is simple…a proverbial line exists and we need to recognize it and think about where we are on that line…why we feel the way we feel and do the things that we do.

“The root to freedom is knowing ones truth beyond the scope of damaged perception.”

Doing the Right Thing or Not

Hurricane Andrea blew through last week and caused some flooding and wind damage in our general area. Unfortunately I have a building that is located in a flood zone. The rains weren’t too bad, but the street level is low and at its lowest point there was flooding which wreaked havoc for a moment. We had no idea how high the water level would get, so I called the power company to have the power shut off…better safe than sorry…right?  I’ll admit the jury may still be out on that one. Not because of any doubt about my decision to make that call, but because the power company made me feel like I was being bullied. I’d been given partial instructions on what to do and then punished for doing what I was told.

 I just don’t get it. Why is it that people don’t/won’t/can’t communicate in a way that is clear and concise? Why do they tell only part of the story and cause constant confusion?

I was told that I would need to have the building inspected in order to have the power restored. Not a problem. I called my electrician, had a preliminary inspection done and then made arrangements with the city for an official inspection. I was then told to that the power would be restored within 24 to 48 hours. As far as I could tell, there was no logical reason why it should take more than 24 hours to restore the power…or so it seemed.

After checking in several times and still no power, I decided to contact the power company again to see what the holdup was. There was no major flooding in the area, so there should be no delays. Upon speaking with a representative at the power company, I was informed that my account had been dissolved and I would have to apply for a new account. What sense does that make?! Where’s the logic? Why would a company create such a policy where a perfectly good, paid up account is dissolved because the owner of the account requests the power be cut for safety? Why couldn’t they just reinstate the power under the existing account? It’s not like the power was shut off due to non-payment and even in that, once the bill is paid the power would come back on under that same account…right? So what’s the difference between the power being shut off for non-payment as opposed to being shut off due to an emergency?!

I received a call from the power company wanting to confirm which building needed power. My son and I hopped into the car to race down the road to be present for the reinstatement of the power. Overrun with joy and anticipation I jump out of the car and ask, “How long will it be before the power is back on?” The young man said, “Ma’am, I’m just here to inspect the meter and to see if there is any current going to the building.” Umm, perhaps someone failed to inform this man that the power lines had been cut and there is no electricity going to the building…at all. Well…well, just another useless step in the grand scheme of things. Now I’m told that this man will place a call back to the company to dispatch a crew to reconnect the power. I thought that was what the Inspector was supposed to do…at least that’s what he told me. Nonetheless, a few hours later I received another call from the crew and they reconnected the power lines and all was well.

From the time I called to have the power shut off until the time it took to get the power restored was a total of 6 days. Thanks a lot corporate power company for succeeding in wasting unnecessary time, effort and money…as usual. One would think that you could come up with a more effective way to respond to your customers and a better turn-around-time for completion of services. I guess that would be too much like right, so here we are…trapped. We find ourselves at the mercy of corporate higher ups that spend way too much time on the golf course and are completely clueless as to how the companies they oversee operate.

I tip my locks to you…BRAVO!!!!! (sarcasm)

Bottom line, you just can’t trust what companies tell you. None of their agents ever have the same information. Isn’t there a better way to inform your staff of the company’s policies so they can convey up-to-date information to your patrons? Good grief, did anyone get the memo?

Perhaps more companies should be run by spectrumites like myself. Patrons would never have to worry about the head games these companies play. At the very least we would be sure to properly inform agents and patron of rules and procedures.

Earliest Childhood Memory

I am diagnosed with Asperger’s Disorder, which is considered to be a form of high functioning Autism. Psychologists say my Asperger’s is mild due to skill set and coping abilities. One of the things that made me aware of differences early on is an ability to recall unusually early childhood memories and an ability to communicate these memories in rich detail later on.

Research: I find after years of personal research the average person’s early memories “typically” start between the ages of 2-5 years. In some cases, memories may start even later if there is early childhood trauma. There have been subjects claiming to have little or no recollection of their youth before the ages of 9-11 years. This being said, those same subjects report having some scarce recollections of shadowy events, but do not seek clarity of memory, understandably so.

Since receiving my diagnosis, I began seeking out individuals on the spectrum (Autism, PDD-NOS, Asperger’s Disorder and High Functioning Autism) to pose my conundrum. So far, it has been a mixture of the “typical” response of 2-5 years alongside a small grouping of individuals who are noted for having early childhood memories that span as far back as 9–18 months of age. This is the first time, outside of a closely related family member that I have spoken with individuals having childhood memories before the age of 2.

In my case, it was during my pre-adolescent years when I first recalled memories going back as far as 6 months old (approximately). Those memories are as vivid today as they were when I first recalled them. My earliest memory is of my mother changing my diaper. She held my feet up to remove the diaper, cringing a little; she quickly removed it and began wiping me clean. I cannot recall an offensive odor. Perhaps I could smell the odor, but did not find it offensive at the time. My mother’s reaction is the only indication that there might have been an odor associated with my diaper.

Observation: When my son was an infant, I made a mental note of his reaction or should I say lack of reaction when changing a heavily soiled diaper and/or emptying his colostomy bag. He did much the same as I did…cooing, grinning and waving his arms which I gladly reciprocated. He did not react to the odor. And when I’d crinkle my nose and sing the “stinky dink” song, my son would simply grin and drool even more.

An infant’s lack of response to his/her own bodily smells appears to be a typical occurrence as observed with my son and other infants.

My diapers were white and made out of cloth. Mom folded the cloth into a triangle and then placed it under me. She used pink bunny diaper pins. I recall her using yellow duck pins as well. I found those diaper pins, many years later, in a little gold colored box, neatly tucked in a drawer. I can also recall my right arm resting on a white container that felt very cool and had a smooth yet soft granular feel to its surface. The tactile feel of the soft granular particles on that smooth cool surface were euphoric. Mom took the item from me and I could see something written on it…Johnson and Johnson’s.  Of course, at that time I did not know what the words said, but knew exactly what the words were when I recalled the memory.

What is your earliest childhood memory?

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